Riding in the 2022 Cancervive Fundraiser

Back when I was first diagnosed, we joined Wellspring and started going to a weekly yoga class for people with cancer (and their families). It was really great, just being around people who were going through similar things but not being directly about “hey let’s talk about cancer because cancer cancer cancer”. We did that for over 2 years, as I went through treatment and began to recover. (and then COVID hit and yoga classes for people with compromised immune systems became impossible)...

August 4, 2022 · 2 min

Testing

Time for the biannual lab tests to see what the slope of a line is…

January 13, 2022 · 1 min

Final Treatment

I wrapped up 29 months of treatment today, with a final infusion of Rituximab. Now, the countdown to being able to be vaccinated begins…

July 20, 2021 · 1 min

Penultimate Treatment

One more to go and I’m done the maintenance immunotherapy treatments. Then, waiting 6 months for my immune system to get back to normal before getting my first COVID vaccine shot…

April 20, 2021 · 1 min

Snapshots from the poison room

I took photos throughout my chemo/immunotherapy treatment, to document my reactions and the view from the poison room. Photos generates a decent slideshow (complete with Generic Copyright-takedown-avoiding Sountrack #1) 1 I spent a few weeks back in 1997 building a similar video with photos from our wedding, in Macromedia Director and then output to VHS to play at the reception in town. I tapped a button on my phone and this chemo slideshow video spit out in seconds....

August 28, 2019 · 1 min

An update from chemo-land

The one where our protagonist realizes he hasn’t published a blog post since November of last year and becomes paralyzed by the realization that he has nothing of note to write about, aside from a health update. Which is a great problem to have, given the circumstances. So. I’ve been on medical leave from work for 4 months now, as I undergo treatment for lymphoma. I’ve finished round 4 and am gearing up for round 5 next week - then only one more round after that before recovering a bit and returning to work in mid-august....

July 6, 2019 · 4 min

1 year

It's weird. It was only last summer that the whole cancer thing happened, but it feels like so much longer. It went from a simple strange blood test to a confirmed strange blood test to every-single-blood-test-ever to a biopsy and CT scan and full diagnosis within a few weeks last year. I have trouble remembering a time before cancer. And now, it's part of everything I do and think and feel....

August 9, 2018 · 2 min

on When Breath Becomes Air

I'd picked up a copy of the book When Breath Becomes Air by Paul Kalanithy after reading a reference to it in a NYTimes article about John McCain, and Grant gave me the nudge to actually start reading it. It's an amazing read, about a young neurologist/budding neuroscientist, who spends his life learning about the nature of life, and death, by experiencing it. I'm thankful that the decisions I'm faced with are happening in slow motion compared to his story, but the effects are largely the same....

May 19, 2018 · 4 min

Slow motion train wreck in progress

Another in a series of really great articles in the Times, about cancer and dying. Fun topics that are kind of relevant. "The most obvious" response, wrote the neurosurgeon Paul Kalanithi in "When Breath Becomes Air," his memoir of a brilliant life cut short, "might be an impulse to frantic activity: to live life to the fullest, to travel, to dine, to achieve a host of neglected ambitions." But cancer limits the energy for compacted living, and a longer view takes hold....

May 12, 2018 · 4 min

What to Say When You Meet the Angel of Death at a Party - The New York Times

A tragedy is like a fault line. A life is split into a before and an after, and most of the time, the before was better. Few people will let you admit that out loud. Source: What to Say When You Meet the Angel of Death at a Party - The New York Times That bit resonated. Actually, the whole article resonated a bit more than I’m comfortable with. Small talk becomes a bit like navigating a mental minefield....

January 28, 2018 · 1 min